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We are pleased to announce that Hrvatski savez za rijetke bolesti, the Croatian Alliance for Rare Diseases, has joined the EGA as a full member.
We are pleased to announce that Asociación de Pacientes de Gaucher del Paraguay has joined the EGA as an associate member.
Gaucher patients, their families and doctors from Slovenia, Croatia, Bosnia & Herzegovina, Serbia, Montenegro and Macedonia met in Sarajevo, from 5th-7th April 2013.
The second regional meeting of Gaucher patients and The first regional meeting …
We are pleased to announce that The National Gaucher Foundation of Canada has joined the EGA as an associate member.
The EGA has been alerted to the existence of another pharmaceutical product called Zavesca that is causing some confusion amongst Gaucher patients throughout the world. The product, whose packaging is almost identical to that of the genuine …
On 3 July 2012, the Committee for Medicinal Products for Human Use (CHMP) recommended the refusal of a marketing authorisation for the medicinal product …
CAMBRIDGE, Mass.--(BUSINESS WIRE)--Genzyme, a Sanofi company (EURONEXT: SAN and NYSE: SNY), today announced that ENGAGE, the first Phase 3 trial of its …
CARMIEL, Israel, Sept. 27, 2012 (GLOBE NEWSWIRE) -- Protalix BioTherapeutics, Inc. (NYSE-MKT:PLX) …
We are pleased to announce that the LSD Support Society of India has joined the EGA as an associate member.
We are pleased to announce that Mexico has joined the EGA as an associate member.