L´EGA est une association européenne qui représente les intérêts des patients de Gaucher ainsi que ceux des associations de patients de Gaucher sans but lucratif en Europe et dans le monde entier.
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Gaucher Association
United Kingdom
www.gaucher.org.uk
Evesham House Business Centre
48 - 52 Silver Street
Dursley
Gloucestershire
GL11 4ND
United Kingdom
Phone/Fax: +44 1453 549 231
email: tanya@gaucher.org.uk
Since 1991, The Gauchers Association has been active in promoting awareness and research, providing general and specific information - including keeping our members up-to-date on the latest research developments, and perhaps most importantly, establishing a support network for those affected by Gaucher disease.