L´EGA est une association européenne qui représente les intérêts des patients de Gaucher ainsi que ceux des associations de patients de Gaucher sans but lucratif en Europe et dans le monde entier.
Français ▼ connexion ▼
Nouvelles & Événements
Bosnia & Herzegovina to join EGA
3 mai 2012
We are pleased to announce that Bosnia & Herzegovina joined the EGA as full member.
FDA approved Elelyso (taliglucerase alfa)
1 mai 2012
FDA approves new orphan drug to treat a form of Gaucher disease (01.05.2012)
The U.S. Food and Drug Administration today approved Elelyso (taliglucerase alfa) for long-term enzyme replacement therapy to treat a form of Gaucher disease, a rare …
Macedonia and Switzerland to join EGA
19 avril 2012
We are pleased to announce that Macedonia and Switzerland joined the EGA as full members.
Humanitarian Aid (March 2012)
26 mars 2012
Humanitarian Aid has always been a priority for the EGA......and will continue to be a priority in the future, we have pledged to help any Gaucher patient who ask us for help where ever they live. However the “Gaucher-world” has …
Shire Announces European Approval of Manufacturing Facility for VPRIV
22 février 2012
Shire Announces European Approval of Manufacturing Facility for VPRIV® (velaglucerase alfa)
European Medicines Agency Approval Adds Significant Capacity for the Manufacture of Shire’s Enzyme Replacement Therapies
Lexington, MA, US …
Launch of the official website of the 10th EWGGD Meeting in Paris
9 février 2012
Together with the organising committee of the 10th EWGGD Meeting we are delighted to provide you with more information about the next meeting.This year’s meeting will be held from June 28th to 30th, 2012 at the Novotel Paris Tour Eiffel in …
Press release - Genzyme: Four-Year Data from Phase 2 Trial ...
9 février 2012
Four-Year Data from Phase 2 Trial of Genzyme Gaucher Disease Oral Compound Suggest Sustained or Continued Improvement Across All Endpoints
09/02/2012Genzyme, a Sanofi company, announced today four-year follow-up data from patients enrolled in the …
Press release: Protalix Announces New Clinical Data on Taliglucerase Alfa
9 février 2012
Protalix Announces New Clinical Data on Taliglucerase Alfa to be Presented at the WORLD Lysosomal Disease Network Symposium 09/02/2012
Protalix BioTherapeutics, Inc. announced today that new clinical data on taliglucerase alfa will be presented at …
EGA is now officially eligible to be involved in the acitivities of the EMA
21 décembre 2011
The EGA is pleased to announce that it received today from the EMA (European Medicines Agency) the confirmation that it complies with the criteria to be involved in the Agency’s activities. For more information...
1st Regional Patient Meeting in Slovenia
21 novembre 2011
Dear Friends
I would like to thank you all who attended the first regional meeting of Gaucher patients, on 5th November 2011, in Čatež, Slovenia. I would also like to thank the colleagues from Genzyme for logistical and financial support.
More …