L’EGA è un gruppo ombrello pan europeo che rappresenta gli interessi dei pazienti Gaucher e quelli dei gruppi di pazienti Gaucher non a scopo di lucro in tutta Europa e altrove nel mondo.
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Gaucher Association
United Kingdom
www.gaucher.org.uk
Evesham House Business Centre
48 - 52 Silver Street
Dursley
Gloucestershire
GL11 4ND
United Kingdom
Phone/Fax: +44 1453 549 231
email: tanya@gaucher.org.uk
Since 1991, The Gauchers Association has been active in promoting awareness and research, providing general and specific information - including keeping our members up-to-date on the latest research developments, and perhaps most importantly, establishing a support network for those affected by Gaucher disease.