- ELENCO DEI MEMBRI
- NOTIZIE ED EVENTI
- SOSTIENI L’EGA
We are pleased to announce that Hrvatski savez za rijetke bolesti, the Croatian Alliance for Rare Diseases, has joined the EGA as a full member.
We are pleased to announce that Asociación de Pacientes de Gaucher del Paraguay has joined the EGA as an associate member.
Gaucher patients, their families and doctors from Slovenia, Croatia, Bosnia & Herzegovina, Serbia, Montenegro and Macedonia met in Sarajevo, from 5th-7th April 2013.
The second regional meeting of Gaucher patients and The first regional meeting …
The Austrian Gaucher Association Meeting will take place on 20/21 September 2013 in Innsbruck, Austria.
Please contact Roman Pichler for more details: firstname.lastname@example.org
More than 85 patients and relative have signed up for the 5th Nordic-Baltic Gaucher Meeting, making this meeting the largest ever.
Patients from Norway, Sweden, Denmark, Finland, Lithuania, Latvia and Estonia are meeting for a two day seminar with …
We are pleased to announce that The National Gaucher Foundation of Canada has joined the EGA as an associate member.
The second regional patient meeting will take place in Sarajevo (Bosnia and Herzegovina), 5.-7. 4. 2013.
Gaucher patients and physicians from Slovenia, Croatia, Bosnia and Herzegovina, Serbia, Montenegro, Kosovo and Macedonia are invited. Welcome …
The EGA has been alerted to the existence of another pharmaceutical product called Zavesca that is causing some confusion amongst Gaucher patients throughout the world. The product, whose packaging is almost identical to that of the genuine …
On 3 July 2012, the Committee for Medicinal Products for Human Use (CHMP) recommended the refusal of a marketing authorisation for the medicinal product …
CAMBRIDGE, Mass.--(BUSINESS WIRE)--Genzyme, a Sanofi company (EURONEXT: SAN and NYSE: SNY), today announced that ENGAGE, the first Phase 3 trial of its …