L’EGA è un gruppo ombrello pan europeo che rappresenta gli interessi dei pazienti Gaucher e quelli dei gruppi di pazienti Gaucher non a scopo di lucro in tutta Europa e altrove nel mondo.
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Notizie
Report from regional patient meeting in Sarajevo, Bosnia & Herzegovina
20 aprile 2013
Gaucher patients, their families and doctors from Slovenia, Croatia, Bosnia & Herzegovina, Serbia, Montenegro and Macedonia met in Sarajevo, from 5th-7th April 2013.
The second regional meeting of Gaucher patients and The first regional meeting …Canada to join the EGA
26 marzo 2013
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We are pleased to announce that The National Gaucher Foundation of Canada has joined the EGA as an associate member.
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Alert for Gaucher Patients and Families regarding Zavesca Getz Product
14 dicembre 2012
The EGA has been alerted to the existence of another pharmaceutical product called Zavesca that is causing some confusion amongst Gaucher patients throughout the world. The product, whose packaging is almost identical to that of the genuine …
EC denies Taliglucerase (Elelyso) market approval for Type 1 GD
6 novembre 2012
European Commission denies Taliglucerase (Elelyso) market approval for Type 1 Gaucher Disease
On 3 July 2012, the Committee for Medicinal Products for Human Use (CHMP) recommended the refusal of a marketing authorisation for the medicinal product …
Genzyme Phase 3 Study of Eliglustat Meets Primary Endpoint
18 ottobre 2012
Genzyme Phase 3 Study of Oral Compound Eliglustat Tartrate for GD Meets Primary Endpoint
CAMBRIDGE, Mass.--(BUSINESS WIRE)--Genzyme, a Sanofi company (EURONEXT: SAN and NYSE: SNY), today announced that ENGAGE, the first Phase 3 trial of its …
Market approval of Elelyso by the Israeli Ministry of Health
3 ottobre 2012
Protalix BioTherapeutics Receives Marketing Authorization for Elelyso(TM) for the Treatment of Gaucher Disease From the Israeli Ministry of Health
CARMIEL, Israel, Sept. 27, 2012 (GLOBE NEWSWIRE) -- Protalix BioTherapeutics, Inc. (NYSE-MKT:PLX) …
India to join the EGA
27 settembre 2012
We are pleased to announce that the LSD Support Society of India has joined the EGA as an associate member.
Mexico to join the EGA
24 maggio 2012
We are pleased to announce that Mexico has joined the EGA as an associate member.
Bosnia & Herzegovina to join EGA
3 maggio 2012
We are pleased to announce that Bosnia & Herzegovina joined the EGA as full member.
FDA approved Elelyso (taliglucerase alfa)
1 maggio 2012
FDA approves new orphan drug to treat a form of Gaucher disease (01.05.2012)
The U.S. Food and Drug Administration today approved Elelyso (taliglucerase alfa) for long-term enzyme replacement therapy to treat a form of Gaucher disease, a rare …