Новости
Croatia to join the EGA
18 Июнь 2013
We are pleased to announce that Hrvatski savez za rijetke bolesti, the Croatian Alliance for Rare Diseases, has joined the EGA as a full member.
Paraguay to join the EGA
11 Июнь 2013
We are pleased to announce that Asociación de Pacientes de Gaucher del Paraguay has joined the EGA as an associate member.
Report from regional patient meeting in Sarajevo, Bosnia & Herzegovina
20 Апрель 2013
Gaucher patients, their families and doctors from Slovenia, Croatia, Bosnia & Herzegovina, Serbia, Montenegro and Macedonia met in Sarajevo, from 5th-7th April 2013.
The second regional meeting of Gaucher patients and The first regional meeting …Canada to join the EGA
26 Март 2013
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We are pleased to announce that The National Gaucher Foundation of Canada has joined the EGA as an associate member.
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Alert for Gaucher Patients and Families regarding Zavesca Getz Product
14 Декабрь 2012
The EGA has been alerted to the existence of another pharmaceutical product called Zavesca that is causing some confusion amongst Gaucher patients throughout the world. The product, whose packaging is almost identical to that of the genuine …
EC denies Taliglucerase (Elelyso) market approval for Type 1 GD
6 Ноябрь 2012
European Commission denies Taliglucerase (Elelyso) market approval for Type 1 Gaucher Disease
On 3 July 2012, the Committee for Medicinal Products for Human Use (CHMP) recommended the refusal of a marketing authorisation for the medicinal product …
Genzyme Phase 3 Study of Eliglustat Meets Primary Endpoint
18 Октябрь 2012
Genzyme Phase 3 Study of Oral Compound Eliglustat Tartrate for GD Meets Primary Endpoint
CAMBRIDGE, Mass.--(BUSINESS WIRE)--Genzyme, a Sanofi company (EURONEXT: SAN and NYSE: SNY), today announced that ENGAGE, the first Phase 3 trial of its …
Market approval of Elelyso by the Israeli Ministry of Health
3 Октябрь 2012
Protalix BioTherapeutics Receives Marketing Authorization for Elelyso(TM) for the Treatment of Gaucher Disease From the Israeli Ministry of Health
CARMIEL, Israel, Sept. 27, 2012 (GLOBE NEWSWIRE) -- Protalix BioTherapeutics, Inc. (NYSE-MKT:PLX) …
India to join the EGA
27 Сентябрь 2012
We are pleased to announce that the LSD Support Society of India has joined the EGA as an associate member.
Mexico to join the EGA
24 Май 2012
We are pleased to announce that Mexico has joined the EGA as an associate member.