International Gaucher Day 'Rare But Not Alone'

Are you ready to celebrate International Gaucher Day?

 This  is an opportunity to remind us that we are not alone. This years campaign headline is “OVERCOMING CHALLENGES, LIVING LIFE.”

Please read  the amazing stories from our friends Michaela, Aimee-Kate, Per, and Nenad, which they have kindly shared with us.

Let us show  the strength of the  Gaucher community, a force which helps us to overcome everyday challenges of Gaucher disease.

Whoever you choose to celebrate IGD, Gaucher disease is a challenge which unites us under the same flag-flag which celebrates life, bravery, and solidarity wherever we are.

So wave with flags and send greetings to the patients all around the world. And don’t forget to share photos with us.

To submit your stories or for further assisitance please contact  Chris at  admin@eurogaucher.org  or Biljana at Biljana@eurogaucher.org   

 

Follow the link to read our first IGD2017 Story.  I hope you are inspired.  

https://www.facebook.com/InternationalGaucherDay/?hc_ref=ARR9qD8_aXkzvRUM81hfjlyPxZjb8Sgt-lOP6B44sOF-h8fiRdWw2pncU1B6cIWhd84&fref=nf

https://www.facebook.com/InternationalGaucherDay/photos/a.838914669575148.1073741830.791921010941181/1084747714991841/?type=3&theater

https://www.facebook.com/InternationalGaucherDay/photos/a.838914669575148.1073741830.791921010941181/1083183068481639/?type=3

https://www.facebook.com/InternationalGaucherDay/posts/1077556009044345

 

International Gaucher Day, first launched by the EGA in 2014, is celebrated annually on 1st October to raise international awareness of Gaucher disease.

Get involved…

You can celebrate IGD very simply by:

  • organising a sporting event: run, walk or bike ride
  • arranging a social event: afternoon tea, coffee morning or a BBQ
  • holding a patient and family meeting/lecture with clinicians
  • distributing information about IGD and Gaucher Disease - see our Fact Sheet
  • sending out the printed IGD materials supplied by the EGA to all its member associations

 

 

 

Social media...

We are encouraging our members to promote IGD using social media:

Link to our Facebook page here

 

 

Downloadable materials...

IGD 2017 Conditions of use

Share your story…

Show our entire community how you celebrated International Gaucher Day by uploading your photos here and check out the fun the rest of us had here.

 

 

 

 

 

 

 

 

We are very grateful to the following event sponsors: