International Gaucher Day 'Rare But Not Alone'

We are already very  busy planning for this year’s International Gaucher Day (IGD)  which will take place on 1st October 2017.


This year we want to show how people live everyday life with Gaucher disease, how strong and successful we are despite our condition. We therefore request that our  members contribute towards this by sharing their own stories and pictures which reflect living with Gaucher disease.

All of the stories and photos that you submit  will be shared on our Facebook page and website.  The one story that the EGA Board judges to stand out above all others in terms of interest and inspiration  will feature in the EGA Members Newsletter dedicated to IGD. The subject of that story will also become the poster  person featuring prominantly on the campaign material for 2017. 


So go ahead; share your story and become the face of IGD 2017. 


•         Please submit your stories and photo images

•         Photo images should be in jpg/jpeg file format

•         By submitting the stories and photos you are giving the European Gaucher Alliance (EGA)  permission to use in their publications including their website and other publications and a signed  consent formwill be required. 

•         The closing date for all submissions is 4th June 2017.


To submit your stories or for further assisitance please contact  Chris at  or Biljana at   


We are really excited to recieve YOUR stories and feel this is a great opportinity to showcase YOUR successes.  



International Gaucher Day, first launched by the EGA in 2014, is celebrated annually on 1st October to raise international awareness of Gaucher disease.

Get involved…

You can celebrate IGD very simply by:

  • organising a sporting event: run, walk or bike ride
  • arranging a social event: afternoon tea, coffee morning or a BBQ
  • holding a patient and family meeting/lecture with clinicians
  • distributing information about IGD and Gaucher Disease - see our Fact Sheet
  • sending out the printed IGD materials supplied by the EGA to all its member associations




Social media...

We are encouraging our members to promote IGD using social media:

Link to our Facebook page here



Downloadable materials...

IGD 2016 Conditions of use

Share your story…

Show our entire community how you celebrated International Gaucher Day by uploading your photos here and check out the fun the rest of us had here.









We are very grateful to the following event sponsors: