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We just wanted to thank everybody that made International Gaucher Day 2017 a huge success and to remind you to share your photos and stories with us. I hope that you all enjoyed the day and celebrated in some fine style. My personal …
Lets hold these people up as true role models in our society and communities.
Per from Norway, a truely inspirational Gentleman.
Please follow the link to the IGD 2017 Facebook page to read about Nenad. Share the story and spread the word. #IGD2017 #rarebutnotalone.
Check out the International Gaucher Day for the latest updates. Let us ramp up our efforts to raise awareness!
For all the latest news and updates on the Go With Gaucher symposium 2017 follow the link below.
Clinical Trial for Gaucher Disease Type 3
Sanofi Genzyme’s Phase 2 Clinical Trial to Evaluate Oral Substrate Reduction Therapy for Gaucher Disease Type 3
Sanofi Genzyme is investigating an orally …
The EGA would like to take this opportunity send Seasonal Greetings and best wishes for the New Year and to thank everyone for their support in 2016.
The office will close at 4.30pm (UK time) on Friday 16 December and re-open at 9am on Tuesday 3 …
We are pleased to announce that the Botswana Organisation for Rare Diseases (BORDIS) has now joined the EGA, taking our membership up to 45 countries worldwide.
A paper written by Anne-Grethe Lauridsen, Jo Higgs and Vesna Aleksovska on behalf of the EGA has been published in the Orphanet Journal of Rare Diseases’ supplement of the 8th European Conference on Rare Diseases & Orphan Products (ECRD …