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Data Protection Law is changing...... Due to changes in data protection legislation; soon the European Gaucher Alliance (EGA) won’t be able to contact you about any of our services or activities unless you explicitly give your …
Rare disese research contributes to the development of diagnostic tools, treatments and cures, as well as improved health and social care for patients and their families.…
During the festive period, the EGA office will be closed from 14:30 on Wednesday 20 December until 9:00 on Tuesday 2 January 2018. If you have an urgent enquiry please email Tanya on email@example.com.
The EGA would like to wish all our …
We just wanted to thank everybody that made International Gaucher Day 2017 a huge success and to remind you to share your photos and stories with us. I hope that you all enjoyed the day and celebrated in some fine style. My personal …
Lets hold these people up as true role models in our society and communities.
Per from Norway, a truely inspirational Gentleman.
Please follow the link to the IGD 2017 Facebook page to read about Nenad. Share the story and spread the word. #IGD2017 #rarebutnotalone.
Check out the International Gaucher Day for the latest updates. Let us ramp up our efforts to raise awareness!
For all the latest news and updates on the Go With Gaucher symposium 2017 follow the link below.